Hi

Hi and welcome to my blog! I am 29 yrs old and have been through a rough few years. I got married in Aug 09 and by Sept 09 I was very ill. I was diagnosed with Chiari Malformation I, Syringomyelia and Hydrocephalus. I had surgery in Sept 09 to relieve the pressure on my brain and to stabilse it, this was called Endoscopic Third Ventriculostomy (ETV). In Feb 2010 I had foramen magnum decompression surgery to remove a section of bone from my skull (craniotomy) and the back part of my c1 vertebrae (laminectomy) to create more space for my cerebrospinal fluid (csf) to flow. Unfortunately for me 4 weeks later I was back in hospital with meningits....I had to have more surgery.....another ETV (which failed straight away) and a ventriculo-peritoneal (VP) shunt inserted. After that I was well and discharged from hospital...but my walking was worsening so I called the specialist nurse who arranged an MRI for me....which showed a massive syrinx (collection of fluid) in my spine....more surgery yet again....so in Aug 10 I had a syringo-subarachnoid shunt inserted into my spine. I spent 9 weeks in hospital (6 1/2 of them in rehab) and have been in a wheelchair learning to walk since then. I hope I don't bore you too often!!

Tuesday 14 June 2011

Sticks!!!

Today is physio day....so today I decided to just take my fischer sticks with me to use....but whenthe ambulance staff come to get me, they told me I had to take my crutches as I was walking in from the ambulance! So that was me told!!.......
Today my physio (Sarah) decided that because it was such a lovely day, we were going to take a walk outside! The first time I will have done so with my new sticks! First she had me do 15 minutes on the exercise bike and I managed to do 7km!
When we went outside, I didn't go far, as the ground is slightly uneven.....but I managed to do it (",)
And when they ambulance staff came back for me...I walked out to the ambulance using my sticks...woo hoo!!
Posted by at 14:09

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