Its been a while!!!

Well, it's been a while since I last posted.In that time I have been discharged from physio, started at the gym, seen works occupational health Dr and started volunteering at my work 1 day a week!!



Been a bumper few months!!


Although it is such a scary thought that I no longer see a physio weekly....it is great to have a normal existence where i'm not visiting the hospital twice a week!!


The gym is a chair based exercise group...hard work but worth it, as I have noticed improvements in my ankle muscles!


And finally to work....thats just ace! (",) getting in and speaking to people again! Also feeling useful!

Booted in the ribs

Eurgh.....feel like I have been booted in the ribs!! Chest infections suck!!

Sadness.....

There is just not enough known about Chiari.....no 2 people react to it or the surgery in the same way, and other medical conditions make it more complicated. Research into chiari and chiari with other complications needs to be done so no more people have to suffer unjustly or be lost to this condition! One thing that really bugs me, is when someone says "oh you need to think positive and you'll be fine".....tell that to the family who have just lost a daughter & sister......they never gave up hope and were always looking on the positive side.....positive thinking is a bonus and can help you to feel better mentally.....but if there is too much going wrong inside, no amount of positive thinking is going to make you well again!!

Discharge from physio

Well.....after 14 months of going to physio twice a week, its been dropped to once a week and the word "discharge" has also been mentioned!!! Scared much? I think the idea of being left to my own devices is scaring me more than anything else!!! How will I know if i'm still improving? What if things go wrong? My physio is amazing and she thinks I will continue improving for a long time to come, but I think just the thought of her not monitoring me is quite strange!!

It will be amazing when I am well enough to be discharged as it is one step closer to getting back to work!!!

Returning to work

So, it has been almost 2 years since I last worked.....23rd of Feb 2010 to be exact.....yesterday I went to see the Dr to get my latest "fit for work" note......my Dr agreed with me that another 3 months (April) and I might be ready for work!! I will be so happy when I am ready to return to work! It has been one hell of a 2 years!! But there finally seems to be a light at the end of the tunnel!!

Spoilt

I received a package in the post from New York the other day....when i opened it i was surprised to find a lovely care package created by a chiari sister called Barbie (",)

In the package was:

a pen with angel written on it, a purple butterfly keyring, a hairband, a pair of purple aloe vera moisture socks, a purple mitten (one of a pair, another chiari sister has my match), a christmas card and a lovely picture of her dog (our chiari mascot maisie) in her christmas dress (",)

It was a lovely package to receive and i am so thankful for my chiari family around the world (",)

Chiari Sisters of the world unite

These two lovely christmas tree decorations have been sent to me by chiari sufferers in the USA.....the star was sent to me by a lovely woman in Oaklahoma and the angel is from Hawaii!!! Its is fantastic to receive things from other sufferers who know and understand what you are going through! It makes me realise that there are others out there thinking about me (",)