As well as having the lovely Arnold in my head.....I also have Syringomyelia....I have had 2 syrinx's in my spine.....the first one was high up and was nicked during my decompression and it went within a few weeks......
Unfortunately I got meningitis and it caused another syrinx to form which covered the majority of my spine.....so I had to have a syringo subarachnoid shunt inserted....
When I woke up from my surgery....I was numb/tingly down my right side....as you can imagine I was petrified and thought i'd had a stroke....I was told this was normal as there was swelling in my spine from surgery......
I was also unable to stand up as my ankles kept "rolling" to the side and I kept loosing my balance. I stayed in the Walton Centre for 3 weeks and was then transferred to a rehab ward where I stayed for over 6 weeks.....
When I got to the rehab ward I was
assessed by the physio's and they decided I needed some AFO's on my ankles to strengthen them and to help allow me to walk....
And when they did get me up on my feet to walk, they noticed that my knees snapped back....so they got me some "swedish knee braces" which stopped that from happening....
It has taken time, but the numbness has reduced and I can now feel most of my right side.....I have been in a wheelchair since that surgery and am currently learning how to walk again.....I can walk short distances using "fischer sticks" and am working hard at physio to get back to normal!!
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