Hi

Hi and welcome to my blog! I am 29 yrs old and have been through a rough few years. I got married in Aug 09 and by Sept 09 I was very ill. I was diagnosed with Chiari Malformation I, Syringomyelia and Hydrocephalus. I had surgery in Sept 09 to relieve the pressure on my brain and to stabilse it, this was called Endoscopic Third Ventriculostomy (ETV). In Feb 2010 I had foramen magnum decompression surgery to remove a section of bone from my skull (craniotomy) and the back part of my c1 vertebrae (laminectomy) to create more space for my cerebrospinal fluid (csf) to flow. Unfortunately for me 4 weeks later I was back in hospital with meningits....I had to have more surgery.....another ETV (which failed straight away) and a ventriculo-peritoneal (VP) shunt inserted. After that I was well and discharged from hospital...but my walking was worsening so I called the specialist nurse who arranged an MRI for me....which showed a massive syrinx (collection of fluid) in my spine....more surgery yet again....so in Aug 10 I had a syringo-subarachnoid shunt inserted into my spine. I spent 9 weeks in hospital (6 1/2 of them in rehab) and have been in a wheelchair learning to walk since then. I hope I don't bore you too often!!

Friday 30 December 2011

Christmas


Well.....Christmas is over for another year....this year has been fantastic!! (",) Just the fact that i'm able to walk again is amazing!! Spending time with my wonderful family has been amazing!!
We packed up our over night bags to stay at my mother in laws on boxing day....and came home yesterday!! Had a great few days but having a well needed day on the couch today while my poor husband is back at work!!


Looking forward to a great new years eve party at friends tomorrow night!! (",)

Friday 23 December 2011

Christmas Night Out


I am so excited right now!! Its my works Christmas night out tonight....I haven't spent a lot of time with my colleagues in the last years due to being ill, so i'm really looking forward to it!! I've even had my hair dyed for it! (",)
We're off to a local cricket club for a night of good food, good company and entertainment!! (",) Just hope my dress fits......

Christmas Camp


Well, this last weekend, I went to North Wales to a little village called Lllansannan with a group of Scouts. It was a great weekend, Friday night was Christmas Eve, we decorated the place and then the kids decorated stockings to hang on their bunks for "Father Christmas" to fill with goodies!! Saturday was Christmas day and all day we spent making various things to take home! and then at 7pm we all sat down to a 3 course meal in black tie!! Sunday was boxing day and we tidied the place and got packed up for going home!! All weekend I had to wear a delightful hat, with my name on so the kids knew who I was!!

One of the things we made, was a fantastic little christmas tree made out of safety pins and beads!!

Tuesday 13 December 2011

Christmas Tree


Well....I managed to put the decorations on my Christmas tree this year!! Made me so happy!! As I had to "direct" my husband with the decorations last year!! Was completely exhausted afterwards but it was well worth it!! (",) and the Christmas cards have all been posted (finally)......getting in the mood for Christmas now as we only have 2 presents left to buy (",)

Saturday 10 December 2011

Christmas

Looking forward to Christmas this year.....last year I had to sit and watch as the Christmas decorations went up and the cards were written.....but this year I have written ALL the cards (",) and i'm looking forward to helping put the tree up tomorrow after a Christmas party this evening!! Yay.....only 5 more presents to buy and we'll be sorted!! Christmas day is a busy one for us, my parents in the morning, my mother in laws for Christmas dinner and then over to my grandparents for a party Christmas night!!
Already in the Christmas spirit after a Scouts Christmas Bingo last night where I won a fantastic food hamper!! and some novelty mugs and plush characters!

Tuesday 6 December 2011

12 Month Review

On 29th November 2011 I had my 12 month review at the Walton Centre.......I woke absolutely petrified (no idea why) and felt so sick.......BUT this time I walked into the Walton Centre.....it had been an awfully long time since I walked in there so it made me feel 10feet tall!!!
I was called into the room by the nurse, and I walked in with my fischer sticks and shook the hand of the Dr (not my NS but one of his Reg's)......He was smiling a lot and revealed to me that he thought the wrong patient had been called, as he wasn't expecting me to walk in to the office!!
It was all good news.....no more MRI's or surgery!!! And I don't need to return until Dec 2012!! He also said that I can apply for my driving license back again!! That would be amazing......

Bye Bye

Today I said goodbye to my zimmer frames....they have sat, unloved (and been my husbands hangers) since July!!! And I also said my goodbyes to the free standing toilet frame and my bathroom is starting to look more like that of a young woman rather than an elderly woman!!! Plus....they had to go this week as they were where we are putting our christmas tree up at the weekend (",)

Long Time

Wow, its been a long time since i've posted!! Well in that time, my wonderful husband, dad and brother raised over £1,500 for the Walton Neuroscience Fund......
In July we went to the south of France for just over 2 weeks....1 week spent in Lourdes where the weather was awful to say the least!! Rain every day!! I looked so special in my wheelchair waterproof!! (",) The second week we spent just outside Bergerac in a converted farm house/barn....it was amazing!! We had our own swimming pool....and the weather was fantastic!!
Since then, I have not used my zimmer frame!! Woo hoo!!! I started with crutches and in around September I graduated to my fischer sticks permanently!! Now at home, I only use 1 stick and occasionally walk unaided!!! That is the best part!! I am still attending physio twice a week at the local hospital, and we are working on me walking unaided!! (",)