Hi

Hi and welcome to my blog! I am 29 yrs old and have been through a rough few years. I got married in Aug 09 and by Sept 09 I was very ill. I was diagnosed with Chiari Malformation I, Syringomyelia and Hydrocephalus. I had surgery in Sept 09 to relieve the pressure on my brain and to stabilse it, this was called Endoscopic Third Ventriculostomy (ETV). In Feb 2010 I had foramen magnum decompression surgery to remove a section of bone from my skull (craniotomy) and the back part of my c1 vertebrae (laminectomy) to create more space for my cerebrospinal fluid (csf) to flow. Unfortunately for me 4 weeks later I was back in hospital with meningits....I had to have more surgery.....another ETV (which failed straight away) and a ventriculo-peritoneal (VP) shunt inserted. After that I was well and discharged from hospital...but my walking was worsening so I called the specialist nurse who arranged an MRI for me....which showed a massive syrinx (collection of fluid) in my spine....more surgery yet again....so in Aug 10 I had a syringo-subarachnoid shunt inserted into my spine. I spent 9 weeks in hospital (6 1/2 of them in rehab) and have been in a wheelchair learning to walk since then. I hope I don't bore you too often!!

Wednesday 6 June 2012

Its been a while!!!

Well, it's been a while since I last posted.In that time I have been discharged from physio, started at the gym, seen works occupational health Dr and started volunteering at my work 1 day a week!!



Been a bumper few months!!


Although it is such a scary thought that I no longer see a physio weekly....it is great to have a normal existence where i'm not visiting the hospital twice a week!!


The gym is a chair based exercise group...hard work but worth it, as I have noticed improvements in my ankle muscles!


And finally to work....thats just ace! (",) getting in and speaking to people again! Also feeling useful!

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